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THE ROOM BEHIND THE POST

Too honest for Facebook. Too important to water down.

The public work tells the truth. This is where the deeper, more personal, and more provocative work gets room to breathe.

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01 / THE LATEST DROP

New from The Defiant Few.

The latest premium release is live: honest, uncomfortable, and given enough room to say what the public feed usually edits out.

A single deep-crimson cord passes through a clear faceted glass prism, appearing as several offset strands within it, on an ivory surface fading into charcoal shadow.
THE DEFIANT TRUTH · MONDAY
November 2, 2026 · 8 min read

I Can Be Wrong About Why.

An uncertain explanation does not make an experience imaginary, but defending what happened should not require me to defend every story I build around it.

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02 / WHY THIS EXISTS

Parkinson’s is the diagnosis. Humanity is the territory.

The Defiant Few is bigger than Parkinson’s. It lives at the intersection of chronic illness, identity, absurdity, psychology, loss, disability, relationships, anger, aging, medicine, mortality, and the occasional joke that has absolutely no business being funny.

These are not reheated Facebook posts behind a paywall. This is original work, access to the thoughts that are too complicated, uncomfortable, or personal for the public feed—and a private Facebook group where members can talk to one another without explaining the brochure version first.

03 / THE WEEKLY RHYTHM

Predictable enough to trust. Never predictable enough to bore you.

Original writing, honest conversation, Ask Richie, and occasional surprises. Enough value to matter without turning membership into another unread inbox.

MON01

The Defiant Truth

The flagship long-form piece. Personal, provocative, and deeper than the public version.

TUE02

What Nobody Tells You

The realities polite conversations avoid: sex, resentment, dependence, medication, fear, and dignity.

WED03

Inside My Head

Stories and journal-style reflections drawn from more than three decades inside Parkinson’s.

THU04

The Defiant Question

One question worth answering together. No small talk and absolutely no ‘How are you?’

FRI05

Parkinson’s After Dark

Dark observations, satire, fake warnings, cartoons, and symptoms too ridiculous not to use.

PARKINSON’S AFTER DARK

Funny in places where funny has no business being.

Dark observations, fake pharmaceutical warnings, ridiculous symptoms, and satire from someone who has lived long enough with Parkinson’s to know the fine print is lying.

“Side effects may include sudden wisdom, inappropriate dancing, and the uncontrollable urge to explain dopamine to strangers.”
04 / PREMIUM ARCHIVE

Every published release from The Defiant Few.

01November 2, 2026 · 8 min read

I Can Be Wrong About Why.

An uncertain explanation does not make an experience imaginary, but defending what happened should not require me to defend every story I build around it.

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02October 30, 2026 · 6 min read

Please Rate Your Recent Loss of Dignity.

In my imaginary patient survey, the blanket gets five stars, the unanswered question gets nowhere to go, and gratitude is asked to approve the entire experience.

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03October 29, 2026 · 5 min read

A Fair Vote Can Still Leave Someone Out.

Giving everyone an equal say does not make a decision inclusive when some people are choosing between preferences and someone else is choosing whether they can participate at all.

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04October 28, 2026 · 6 min read

I Want to Do It Again.

The part of a good weekend I keep returning to is the wish for another one, and I want to understand that wish without making it promise more than it can.

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05October 27, 2026 · 7 min read

We Share a Diagnosis. We May Not Be Friends.

A shared illness can spare us an explanation without making us compatible, and a community becomes smaller when belonging requires pretending otherwise.

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06October 26, 2026 · 8 min read

My Backlog Is Not My Life’s Work.

Illness can leave work unfinished, but I do not want a list of old intentions deciding what every usable hour is for.

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07October 23, 2026 · 7 min read

Your Miracle Came with Homework.

An unsolicited health tip can arrive as a gift while quietly assigning me the research, the decision and the job of making its sender feel helpful.

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08October 22, 2026 · 6 min read

The Laugh Does Not Settle the Argument.

I can claim the right to laugh at my own illness and still have to answer for what the joke reveals about somebody else.

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09October 21, 2026 · 7 min read

My Children Do Not Owe Me Their Futures.

A parent can want help, fear needing it, and still refuse to turn love into a debt collected from the children who grew up inside it.

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10October 20, 2026 · 7 min read

I Can Miss People and Still Want to Be Alone.

Wanting connection and wanting relief from the work of being company can be true at the same time—and the contradiction can make both needs harder to admit.

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11October 19, 2026 · 8 min read

Let Me Be New at Something.

After years of explaining what I know, I want room to do something badly without turning the attempt into a referendum on the life I have left.

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12October 16, 2026 · 6 min read

I Am Exhausted. Sleep Is Not Impressed.

Insomnia is bad enough without making every awake hour proof that I am managing my illness badly.

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13October 15, 2026 · 5 min read

A Real Apology Does Not Restore the Old Relationship.

Remorse can be sincere and change can be real without making closeness something the other person now owes.

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14October 14, 2026 · 7 min read

The Job That Paid for My Life Was Not the One on My Business Card.

My part-time years at ShopRite helped finance the life my law degree gets credit for, which makes me question how I learned to rank the work—and the people—holding a life together.

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15October 13, 2026 · 9 min read

Embarrassment Arrives Before the Symptom Does.

With an unpredictable body, shame can enter the room early and start canceling a life nothing has actually interrupted yet.

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16October 12, 2026 · 9 min read

Suffering Did Not Make Me Kinder. It Made Me Tempted to Keep Score.

Thirty-five years with Parkinson’s gave me perspective, but perspective becomes poison when I use my pain to disqualify somebody else’s.

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17October 9, 2026 · 9 min read

My Body and I Have Been Assigned a Group Project. It Is Not Contributing.

Parkinson’s can turn the body into an unreliable teammate, but blaming it too long eventually teaches me to despise part of myself.

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18October 8, 2026 · 8 min read

A Promise Can Become Dishonest Without Being Broken.

When capacity changes, honoring an old promise may mean renegotiating it before denial makes somebody else pay.

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19October 7, 2026 · 10 min read

My DNA Finally Explained Me. Then It Kept Talking.

The PRKN result answered why Parkinson’s found me—and turned one man’s medical history into family information.

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20October 6, 2026 · 9 min read

The Treatment Worked. Now I’m Afraid to Outearn It.

When treatment gives part of your life back, the system can make using that life feel like a threat to the care that restored it.

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21October 5, 2026 · 10 min read

My Diagnosis Does Not Own My Imagination.

When illness gives you an audience, changing the subject can feel like betrayal—even when the change is how you take your identity back.

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22October 2, 2026 · 8 min read

The Neurologist Has Entered the Room. Everyone Act Normal.

Nothing improves Parkinson’s faster than the arrival of the one person you desperately need to see it misbehave.

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23October 1, 2026 · 6 min read

Friendship Should Not Require a Perfect Attendance Record.

Chronic illness can make plans unreliable without making the friendship unimportant, but keeping the connection alive cannot become only one person’s job.

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24September 30, 2026 · 8 min read

I Was Trained to Run Toward the Emergency. Nobody Taught Me What to Do When It Moved In.

A crisis has an alarm, a role and an ending; chronic illness asks for a quieter kind of courage that may never hear the all-clear.

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25September 29, 2026 · 8 min read

I Have Become Easier to Help Than to Know.

Chronic illness can make a relationship excellent at managing needs while quietly forgetting to remain curious about the person who has them.

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26September 28, 2026 · 8 min read

I Have Won Arguments That Cost More Than Losing Would Have.

Being correct can become a way to avoid being vulnerable, and victory is expensive when the relationship has to pay for it.

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27September 27, 2026 · 6 min read

Everybody I Love Is Carrying an Outdated Map of Me.

Being known can become its own kind of loneliness when the people closest to me are still navigating by a version I no longer inhabit.

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28September 25, 2026 · 8 min read

Thank You for Calling Parkinson’s. Your Symptom Is Very Important to Us.

Please remain on the line while your tremor, fatigue, bladder, mood, blood pressure and swallowing problem are transferred to six different departments.

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29September 24, 2026 · 7 min read

Sometimes I Call It Protection Because Control Sounds Ugly.

Keeping painful truths from the people I love can spare them fear, but it can also steal their right to decide what love requires.

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30September 23, 2026 · 8 min read

I Checked Myself Into a Psychiatric Hospital. Parkinson’s Came With Me.

Dopamine-agonist withdrawal pushed me into psychiatric care and taught me how quickly medicine stops looking like medicine when the injury becomes psychological.

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31September 22, 2026 · 9 min read

Everybody Gets to Step Away from My Illness Except Me.

The people who love me deserve relief from the work of illness; the part nobody says aloud is that their necessary rest can feel like rejection when I cannot leave the body creating the work.

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32September 21, 2026 · 9 min read

I Don’t Just Want to Be Loved. I Want to Be Useful.

When illness changes what I can do for other people, reassurance cannot fully replace the dignity of still having something to contribute.

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33September 20, 2026 · 6 min read

Most Last Times Do Not Know They Are Last.

Life rarely announces an ending while it is happening; most final moments acquire their meaning only after we can no longer return to them.

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34September 18, 2026 · 8 min read

My Parkinson’s Has Been Denied for Lack of Prior Authorization.

The disease entered without permission; the care needed to live with it may have to wait while strangers review the paperwork.

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35September 17, 2026 · 7 min read

A Diagnosis Is Not a Family Press Release.

Illness may affect everyone in the room, but that does not automatically give everyone the same claim to the patient’s private information.

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36September 16, 2026 · 8 min read

I Know My Biography Better Than I Know Myself.

A diagnosis, a law degree, a career, books, testimony and a public voice can describe my life without answering who is living it.

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37September 15, 2026 · 8 min read

Sometimes the Applause Is the Insult.

Praise can sound kind while quietly revealing how little the world expected from a disabled person.

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38September 14, 2026 · 9 min read

I Keep Competing with a Father Who Never Existed.

Parkinson’s gave me a fictional rival: the healthy father I imagine my children should have had, a man who never had to survive a single real day.

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39September 13, 2026 · 6 min read

I Have Outlived Some of My Certainties.

Changing my mind can feel like betraying the person I used to be, even when that person was wrong.

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40September 11, 2026 · 7 min read

According to Facebook, Everything Is Parkinson’s.

The internet has created the world’s fastest neurology clinic, staffed entirely by people who begin with ‘not medical advice, but.’

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41September 10, 2026 · 6 min read

Pain Is Not a Permission Slip.

Illness can shape behavior and shrink capacity, but it cannot require the person who was hurt to stop being hurt.

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42September 9, 2026 · 7 min read

I Became a Lawyer. I Never Got to Become the Lawyer I Might Have Been.

Passing the bar proved Parkinson’s had not stopped me; it did not mean the career I fought for would become the career I imagined.

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43September 8, 2026 · 7 min read

Joy Starts Looking Like an Unpaid Bill.

When the future contains unknown costs, spending money on an ordinary pleasure can feel like stealing from the person I may need to become.

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44September 7, 2026 · 7 min read

Some Things Deserve to Be Abandoned.

We praise perseverance so blindly that people can spend years proving loyalty to goals, identities and versions of life that are already gone.

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45September 6, 2026 · 6 min read

I Keep Putting My Younger Self on Trial with Evidence He Never Had.

Regret becomes cruel when the person I am now prosecutes the person I was using knowledge that arrived only after the choice was already made.

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46September 4, 2026 · 8 min read

My Man Card Has Been Declined.

Chronic illness does not merely change what a man can do; it exposes how much of manhood was being rented from strength, independence, earning, sexual confidence and silence.

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47September 3, 2026 · 7 min read

Safe Is Not the Same as Alive.

Concern can protect a disabled person from harm, but when safety becomes the only value in the room, protection starts quietly repossessing the life it claims to preserve.

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48September 2, 2026 · 8 min read

The Treatment Worked. I Was Still Me.

Vyalev changed my movement dramatically, but a body that becomes more available does not automatically know how to rebuild the life shaped around its absence.

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49September 1, 2026 · 8 min read

I Still Care. The Feeling Just Doesn’t Always Arrive.

Apathy can leave my values intact while disconnecting them from the internal ignition that turns caring into action.

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50August 31, 2026 · 8 min read

I Refuse to Let Parkinson’s Write My Obituary.

A diagnosis can shape almost every chapter of a life and still have no right to claim authorship of the whole story.

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51August 30, 2026 · 5 min read

I Am Old Enough to Miss People I Would Never Want Back.

Nostalgia can make a lost relationship feel sacred, but missing what existed does not mean it belongs in the life I have now.

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52August 28, 2026 · 7 min read

My Body Has Been Recalled. No Replacement Parts Available.

Medicine can measure what malfunctions, but somewhere between diagnosis and treatment the person can start feeling like defective equipment with excellent paperwork.

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53August 27, 2026 · 7 min read

A Bigger Microphone Can Make the Truth Smaller.

Organizations can amplify an advocate’s voice, but amplification is not freedom when the sentence that most needs saying must first survive somebody else’s comfort.

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54August 26, 2026 · 8 min read

Almost Everything I Became Happened After Parkinson’s.

I was diagnosed before the law degree, the courtroom, the testimony, and most of my adult identity; Parkinson’s was present during the construction, but that does not make it the architect.

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55August 25, 2026 · 7 min read

The Help Was Free. The Debt Wasn’t.

Dependence creates an emotional economy where gratitude, guilt, resentment, and power begin trading places before anyone admits a transaction occurred.

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56August 24, 2026 · 8 min read

Not Everything I’m Angry About Is a Symptom.

The world is comfortable with sick people until our honesty stops being pleasant; then suddenly the disease is not the problem—our attitude is.

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57August 23, 2026 · 5 min read

Nobody Left. The Relationship Still Ended.

A person can remain in your life long after the relationship between you has quietly disappeared.

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58August 21, 2026 · 7 min read

My Nervous System Is on a Performance Improvement Plan.

After thirty-five years of missed deadlines, unauthorized movements, and hostile takeovers of ordinary tasks, management has finally scheduled a meeting.

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59August 20, 2026 · 5 min read

Hope Is Not a Gag Order.

Refusing to discuss death may feel protective, but the silence often serves the people who are afraid to listen.

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60August 19, 2026 · 7 min read

The Machine That Helped Save Me Is Quiet Now.

DBS changed what was possible for me in 2008; now it sits switched off while I live inside a body transformed again, this time by Vyalev.

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61August 18, 2026 · 7 min read

Desire Should Not Require a Medical Disclaimer.

Chronic illness can complicate sex without canceling desire, privacy, adulthood, or the right to be wanted without becoming somebody’s lesson.

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62August 17, 2026 · 7 min read

Survival Didn’t Just Make Me Stronger. It Made Me Harder to Reach.

Some of the walls people admire as resilience were built because needing anyone started to feel more dangerous than being alone.

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63August 16, 2026 · 4 min read

Still Being Here Is Not a Small Thing.

Not every act of survival looks brave. Sometimes it looks like waking up, telling the truth, and refusing to disappear from your own life.

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64August 14, 2026 · 7 min read

Congratulations. I’ve Reached Platinum Status with Parkinson’s.

After thirty-five years in a loyalty program I never joined, I would like to know where the hell they are hiding the complimentary upgrades.

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65August 13, 2026 · 5 min read

The Plan Was Real. So Was the Cancellation.

An unpredictable body can change the answer without making the original yes a lie.

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66August 12, 2026 · 7 min read

When Your Life Becomes Evidence

I spent years turning Parkinson’s into testimony, speeches, jokes, and stories—but sometimes I wonder what happens to a life when you become too damn good at explaining it.

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67August 11, 2026 · 8 min read

The Gratitude Tax

Needing help is hard enough without feeling like every act of kindness comes with a quiet demand to become easier, nicer, and less complicated.

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68August 10, 2026 · 7 min read

The Strange Jealousy of Watching Healthy People Waste Their Bodies

I don’t want anyone else’s life. Sometimes I just want the freedom they don’t even realize they have.

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Richie Pikunis
05 / ASK RICHIE

Three free answers do not always finish the conversation.

Everyone can ask three complete questions free every day—no shortened answers and no watered-down versions. Defiant Few members can keep going without the daily limit, with follow-up conversations, conversation history, deeper explanations, and voice interaction when available, all grounded in more than three decades of lived Parkinson’s experience.

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06 / MEMBERSHIP

Fourteen days to decide if this room is yours.

Both plans include every premium article, Ask Richie, the full weekly rhythm, access to the private Defiant Few Facebook group, and anything Richie decides is too honest for the public feed.

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