The Defiant Truth
The flagship long-form piece. Personal, provocative, and deeper than the public version.
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THE DEFIANT TRUTH · MONDAY
Parkinson’s gave me a fictional rival: the healthy father I imagine my children should have had, a man who never had to survive a single real day.
Read the premium article ↗The Defiant Few is bigger than Parkinson’s. It lives at the intersection of chronic illness, identity, absurdity, psychology, loss, disability, relationships, anger, aging, medicine, mortality, and the occasional joke that has absolutely no business being funny.
This is not six reheated Facebook posts behind a paywall. It is original work, access to the thoughts that are too complicated, uncomfortable, or personal for the public feed—and a private Facebook group where members can talk to one another without explaining the brochure version first.
Original writing, honest conversation, Ask Richie, and occasional surprises. Enough value to matter without turning membership into another unread inbox.
The flagship long-form piece. Personal, provocative, and deeper than the public version.
The realities polite conversations avoid: sex, resentment, dependence, medication, fear, and dignity.
Stories and journal-style reflections drawn from more than three decades inside Parkinson’s.
One question worth answering together. No small talk and absolutely no ‘How are you?’
Dark observations, satire, fake warnings, cartoons, and symptoms too ridiculous not to use.
Shorter, more philosophical, and less about disease than what it means to remain human.
Dark observations, fake pharmaceutical warnings, ridiculous symptoms, and satire from someone who has lived long enough with Parkinson’s to know the fine print is lying.
“Side effects may include sudden wisdom, inappropriate dancing, and the uncontrollable urge to explain dopamine to strangers.”
Parkinson’s gave me a fictional rival: the healthy father I imagine my children should have had, a man who never had to survive a single real day.
Read this release ↗Changing my mind can feel like betraying the person I used to be, even when that person was wrong.
Read this release ↗The internet has created the world’s fastest neurology clinic, staffed entirely by people who begin with ‘not medical advice, but.’
Read this release ↗Illness can shape behavior and shrink capacity, but it cannot require the person who was hurt to stop being hurt.
Read this release ↗Passing the bar proved Parkinson’s had not stopped me; it did not mean the career I fought for would become the career I imagined.
Read this release ↗When the future contains unknown costs, spending money on an ordinary pleasure can feel like stealing from the person I may need to become.
Read this release ↗We praise perseverance so blindly that people can spend years proving loyalty to goals, identities and versions of life that are already gone.
Read this release ↗Regret becomes cruel when the person I am now prosecutes the person I was using knowledge that arrived only after the choice was already made.
Read this release ↗Chronic illness does not merely change what a man can do; it exposes how much of manhood was being rented from strength, independence, earning, sexual confidence and silence.
Read this release ↗Concern can protect a disabled person from harm, but when safety becomes the only value in the room, protection starts quietly repossessing the life it claims to preserve.
Read this release ↗Vyalev changed my movement dramatically, but a body that becomes more available does not automatically know how to rebuild the life shaped around its absence.
Read this release ↗Apathy can leave my values intact while disconnecting them from the internal ignition that turns caring into action.
Read this release ↗A diagnosis can shape almost every chapter of a life and still have no right to claim authorship of the whole story.
Read this release ↗Nostalgia can make a lost relationship feel sacred, but missing what existed does not mean it belongs in the life I have now.
Read this release ↗Medicine can measure what malfunctions, but somewhere between diagnosis and treatment the person can start feeling like defective equipment with excellent paperwork.
Read this release ↗Organizations can amplify an advocate’s voice, but amplification is not freedom when the sentence that most needs saying must first survive somebody else’s comfort.
Read this release ↗I was diagnosed before the law degree, the courtroom, the testimony, and most of my adult identity; Parkinson’s was present during the construction, but that does not make it the architect.
Read this release ↗Dependence creates an emotional economy where gratitude, guilt, resentment, and power begin trading places before anyone admits a transaction occurred.
Read this release ↗The world is comfortable with sick people until our honesty stops being pleasant; then suddenly the disease is not the problem—our attitude is.
Read this release ↗A person can remain in your life long after the relationship between you has quietly disappeared.
Read this release ↗After thirty-five years of missed deadlines, unauthorized movements, and hostile takeovers of ordinary tasks, management has finally scheduled a meeting.
Read this release ↗Refusing to discuss death may feel protective, but the silence often serves the people who are afraid to listen.
Read this release ↗DBS changed what was possible for me in 2008; now it sits switched off while I live inside a body transformed again, this time by Vyalev.
Read this release ↗Chronic illness can complicate sex without canceling desire, privacy, adulthood, or the right to be wanted without becoming somebody’s lesson.
Read this release ↗Some of the walls people admire as resilience were built because needing anyone started to feel more dangerous than being alone.
Read this release ↗Not every act of survival looks brave. Sometimes it looks like waking up, telling the truth, and refusing to disappear from your own life.
Read this release ↗After thirty-five years in a loyalty program I never joined, I would like to know where the hell they are hiding the complimentary upgrades.
Read this release ↗An unpredictable body can change the answer without making the original yes a lie.
Read this release ↗I spent years turning Parkinson’s into testimony, speeches, jokes, and stories—but sometimes I wonder what happens to a life when you become too damn good at explaining it.
Read this release ↗Needing help is hard enough without feeling like every act of kindness comes with a quiet demand to become easier, nicer, and less complicated.
Read this release ↗I don’t want anyone else’s life. Sometimes I just want the freedom they don’t even realize they have.
Read this release ↗
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